(A Unique Helpline for Paralytic survivors and their family members)
Hum Saath Hai is a team of trained physios specialized in neuro physiotherapy working together under a” Mission Life after Stroke” to train paralytic survivors and their family members. In our long path of stroke rehab, it has been seen that if any family member participate with all her/his efforts and continues till some bigger achievement in the survivor’s life, results are tremendous as compared to the survivor without much interest of family.
Hum saath Hai is also working with the same vision to aware, train, counsel, motivate, guide ,sensitise family members to get faster recovery and Rehabilitation. Paralysis or any chronic disease causes a huge discomfort to family in many terms , Economic, Psychological, Social, and many other webs of Problem.
The Bodily suffering of patient enhances once the psychological suffering of family increases. In the recovery Process of Paralytic Patients, the participation of family is very Crucial. Family would be participating better once they are aware about dos and don’ts with paralytic patient The awareness of family member is very crucial about their role in the recovery of Paralytic Patient.
As a medical professional, it’s our duty to train family members and caretaker about the problems and solutions of
paralytic patients. Many issues like Hygiene of Patients, Day today Functional Activities, Position in
sleeping, Psychological management, Independent behavior or planning need to be addressed.
Positive social support can have a significant impact on the Physical and Psychological well being of Patients with stroke.
The core Objective is to train caregiver and family members of Paralytic Patients to gain following knowledge.
1. Proper Hygiene is essential for recovery.
2. How to move from dependence to independence.
3. Danger of Fall.
4. Prevention of Complications.
5. Realistic Approach V/s Expectations.
6. Psychological Boost, Motivation is essential for All.
7. How to manage Diet and nutritive Issues.
“Families are the compass that guides us. They are the inspiration to reach great heights,
and our comfort when we occasionally falter.” (Brad Henry)
Hum Saath Hai is working with more than 80 stroke survivors along with their family members. They are followed at every fortnight or monthly as per their requirement . They are given Home Exercise Program for coming 15 days and followed through What’ s App Videos or personally.
After achieving Short Term Goals we move to the Next goal in achieving Long term Goal.
“ When all the Dust is Settled and the Crowds are gone, The things that matter Are Faith, Family and Friends.”
( BARBARA BUSH)
With this spirit we support them when they need it the most. We Help the people to rebuild their lives after stroke.It is purely social body working In association with DBL social welfare foundation and Govt. homeopathic hospital.
How we can help?
We listen and talk through your situation to deal with stroke
We give information about stroke through social media
We discuss your rehabilitation and recovery after stroke
We point you towards people and services that offer support after a stroke.
We send leaflets and factsheets with information about stroke.
We direct you to further sources of information about useful resources.
How do we connect?
Through our free Helpline Number 7089189189
Through our social media.
Through our website www.humsaathhai.com
Through our email:[email protected]
Impact on family :
India , like other low and middle income countries is experiencing a stroke epidemic. During the past 2 decades , the prevalence of strke in india is estimated to range from 84 to 262 per 100,000 population in urban areas.It is a common understanding in india that stroke survivors need intense and regular physiotherapy to recover lost functions of
muscles and nerves . With over one million stroke cases in india annually, a large number of victims grapple with the debilitating effects of posrt stroke disability. Partial or total paralysis , spasticity and aphasia are common side effects of stroke. While rehabilitation with physiotherapy is a common practice, but the survivors need many other areas where help is required like behavioral changes , motivation, functional independence, hobbies and interest etc.
Stroke patients experience many different emotions after stroke.Sometimes it’s caused by grief after stroke, other times there are serious psychological conditions that occur, like post traumatic stress disorder after stroke..These behaviors are cofusing to family members. Their loved one may not seem like the samr person and they may feel that they have lost him or her. Stroke affects the family and friends of the patient. Noperson or family is ever prepared for the reality of astrke and its consequences.
Although each individual and family is different, many people experience different feelings .
When a person has a stroke , family roles are often changed. Role changes can be difficult and family members may find themselves feeling exhausted and resentful about what they have to give up.
Changes in the physical environment that to be made to the home to accommodate the needs of stroke survivor may also be a source of stress for family.
Our role: We counsel family members on various issues to lessen their stress about stroke survivors like firstly treat the person as an adult, Be patient, recovery can come slow, Do not make too many demands or push too hard, Surround the person with familiar things ( Photos, treasures),Talk about things the person knows about, Speak slowly with short sentences, Follow some functional activity for survivors at home,Get indulge with survivors in their hobbies , Prevent them from falling, plan outings with them .
One of the most important factors in patient’s recovery after a disability, injury or illness is the involvement and support of the family. Usually the patient’s family is caregiver and thus plays a vital part in the rehabilitation process for a number of reasons : Position attitudes and reinforcement from family members can inspire patient’s commitment to recovery and help them to adapt to a new challenges.